14 JULY 2019
Participated in the KAN Monsoon Summit at Kochi, Kerala which included a meeting with the world-renowned pediatric neurologist and SMA expert, Dr. Enrico Bertini. Attended by Dr. Razeena, Tintu K. John, and Solomon Raphel from Kerala.
Dr. Enrico shared his vast experience in the management of SMA
patients with special emphasis for us on how to guide and empower an
SMA patient group. He advised on the importance of lobbying with the govt. and Pharma, setting national and international collaborations, and raising funds for SMA care and research.