SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe.

United, and in collaboration with all stakeholders, we will achieve our vision of creating a better world for all those living with SMA.

We work on the following priorities to improve access to diagnosis, optimal treatment, and care for all people living with SMA in Europe: Research; Therapy and care; Healthcare system, policy, and access; Capacity building, communications, and outreach.

Our members are national patient organisations, led by people living with SMA and their families. Only through a true representation of the SMA community will the voices of people living with SMA, and their families, be heard, and their needs will be met.

All together. One goal.

For more details please visit

No matter what question, our team is here to help.

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