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  • Home
  • About
    • About us
    • About SMA
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      • Kids (0 -12 yrs)
      • Adults
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Advocacy with Govt

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  • Advocacy with Govt

Meeting with Director General controller of India

Moumita

Participated in round table discussion on the National Rare Disease Policy

Moumita

Archana Panda & SMA Warrior Anushka Panda- met honorable Health Minister Shri J.P.Naddaji- to discuss about Spinal Muscular Atrophy.

Moumita

Participated in a stakeholder meeting conducted by Preeti Sudan, Health Secretary, Ministry of Health and Family Welfare

curesma

Met the Insurance Regulatory and Development Authority of India (IRDAI) in Hyderabad

curesma

Met Dr. V K Paul, member of NITI AAYOG and discussed the availability, affordability, and accessibility of SMA treatment in India

curesma

Met Dr. Harsh Vardhan, Minister of Health and Family Welfare, Government of India

curesma

Chief Economic Advisor of India to discuss on funding for SMA treatment

curesma

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