Cure SMA Foundation of India is a parent led community, initiated in January 2014 by a small group of caring Indian parents who were driven to support each other. The parents of children as well as adults living with SMA have joined hands to advocate for broad access to treatments for this severe neuromuscular disorder. In 2018, the organization evolved, became incorporated and grew. Its mission was restructured to include direct family support in addition to augment the efforts to bring the lifesaving SMA therapy to India. Our board of trustees increased its representation across pan India.