9 AUG 2020

On 9th  August, we had a virtual round table discussion on “Universal access to life saving medicines-challenges and solutions”. This was the first multi stakeholder discussion on Spinal Muscular Atrophy in India. This is starting point of identifying, categorizing challenges, and working towards finding a sustainable universal access to the lifesaving medicines. It involved DCGI, CDSCO, patient advocacy groups from Europe, representatives from Biogen, Novartis and Roche, doctors/clinicians from all major hospitals from North, South, East and West India, along with Cure SMA India.