Spinal muscular atrophy (SMA) is a rare, genetic neuromuscular and a progressive disorder. The SMA community officially recognizes August as “Spinal Muscular Atrophy Awareness Month”.
During this unusual year, we still worked to engage the SMA community and the general public around SMA Awareness Month by hosting virtual events such as webinars, sharing powerful stories of SMA warriors, and using social media to create awareness and share information about SMA. From webinars to candle lighting, art and singing events for the SMA warriors, and a social awareness campaign on social media, efforts to mark SMA Awareness Month were hugely successful among the community.
It was followed by another webinar on 8th August in association with SRCC Hospital and Roche on “Spinal Muscular Atrophy Reimagined with new Treatment Option” (SMART)”. It covered different modalities of treatment and interventions, recent therapies, perspective of patient support groups like Cure SMA India and the role of multi-disciplinary clinics, providing enriching knowledge.