Welcome to the CureSMA
India aid network
Since its inception in 2014, CureSMA Foundation has been supported by a large group of individuals, families of children affected by SMA as well as adult SMA survivors, who collectively helped raise awareness of this platform. With an ultimate goal of creating access to the most expensive treatments, we prioritize providing the utmost care for SMA patients, which is the current need.
Our Mission and Values
At Cure SMA Foundation of India, everything from our funding priorities to our day-to-day decisions are driven by our vision, mission and values.
We dream of a SMA free world and a barrier free universal healthcare for all.
2021 Annual Fundraiser
Help raise INR 1,00,00,000 for the SMA community.
CureSMA Foundation of India through the year carries out series of awareness activities, campaigns and care/support initiaitves. It creates a Corpus fund that is required to support and grow the ability to support registered patients of CureSMA.
What makes CureSMA different?
We’re a top-rated humanitarian organization focused on ending generational lack of access to therapies or treatment for rare disease. Over the past few years, we’ve developed a high-impact network, awareness, advocacy and campaigns that empowers children affected with SMA. With your support, children receive access to health care, educational resources and life-changing programs in safe, critical care.
Volunteer Positions Available
Join your hands with us to create a better life and beautiful future for our children
Frequently Asked Questions
SMA type 1 is an extremely severe form of the disease. Most children with SMA type 1 die before their second birthday.
People with SMA type 2 live into early adulthood and, with proper care, many are living well into adulthood.
Due to the progressive nature of SMA and the unavailability of it’s treaments (Spinraza and Zolgensma) in India, it is very difficult for the patients to get better over time. However, we at Cure SMA India are developing SMA management protocols and best practices that can improve the quality of life and delay its progression to some extent. For details, please contact our team.
Depending on the child’s level it can range from standing frame, walker, manual wheelchair, power wheelchair, Spinal Braces, AFO’s etc
Spinraza and Zolgensma are the two drugs approved by USFDA for the treatment of spinal muscular atrophy. However, they are currently inaccessible in India. A combination of Physiotherapy , Hydrotherapy and Occupational Therapy can do wonders in overall quality of life of sma patients
SMA does not cause intellectual disability as the brain is not a muscle. There for your child’s intelligence is unaffected. Like all children they will thrive for information.
There is no reason for your child not to be mainstreamed. Talk to your local school about the different ways they can provide an accessible education for your child. Many SMA children are high achievers
Modifications such as lifters ramps, toilet grab rails talk to OT and Physio about what is best for your child.